Following the cesarean section 𝐛𝐢𝐫𝐭𝐡, the parents were stunned to discover that their daughter’s mandible was not developing “naturally.” Due to a rare bilateral Macrostomia disease, Ayla Summer Mucha’s lips did not completely fuse during pregnancy, and she will likely have 𝐛𝐢𝐫𝐭𝐡 defects in the future.
Due to bilateral stomata, Ayla Summer Mucha’s December 2021-𝐛𝐨𝐫𝐧 mouth corners did not fuse together during her pregnancy. Only 14 cases of the disease have been reported worldwide. As it is possible that their daughter will not be able to grasp on or suckle, Cristina Vercher, 21, and Blaize Mucha, 20, are already discussing surgery with surgeons to correct her wide smile. Vercher, who resides in South Australia, told Jam Press, “Blaize and I were unaware of the condition, and I’ve never known anyone 𝐛𝐨𝐫𝐧 with stomatitis, so the news came as a surprise.”
In addition, the ultrasound scans of pregnant women did not reveal any unusually large mouth holes that would have made the examinations uncomfortable for the clinicians. This made the encounter more unpleasant, as it took the doctor several hours to respond, and the facility provided the patient with little information or assistance. Such an uncommon occurrence. Given that I was so arrogant during my pregnancy, my only thought as a mother is where did I go wrong. Numerous physicians reassured them that they had no control over the situation. Medical personnel at Flinders Medical Center in Adelaide, South Australia, were initially perplexed because they had never encountered a case like this before and prenatal tests had failed to detect it. Macrostomia effects the behavior of infants, particularly during latching and feeding, and is not merely an unusual visual condition.
Because it affects facial function, macrostomia frequently necessitates surgery. “Although we have not yet received the precise details of the procedure, we do know that it involves skin closure with minimal disfigurement. Following the operation, we will encounter a pair of troublesome difficulties. People with Alya’s disease are urged to undergo surgery for medical reasons so that they will have a functional mouth as adults.
Their account has more than 118 thousand followers. Cristina and Blaize created a TikTok account to share their experiences a few months later, in pursuit of more knowledge and understanding. One video with 47.4 million views depicts Ayla donning a floral dress, and she is showered with affection.
“Hãy hỏi với phép lịch sự của một người mẹ. Bạn có thể cung cấp thêm thông tin về cô ấy không? Tôi rất muốn tìm hiểu thêm về vẻ đẹp của cô ấy”, một người khác bình luận.
“Ôi chúa ơi. Bạn thật đáng quý!! Bỏ qua tất cả những bình luận gây tổn thương đó, sự dễ thương của bạn quá đáng yêu”, một người dùng viết.
Nguồn: lalanews.live